Using the Internet Safely, part 2

Internet benefits and dangers

1) Many people use the Internet in everyday life.

  • Family and friends keep in touch using the Internet.
  • We use computers and the internet to learn new information.
  • We also use computers for personal business like shopping or banking.

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Let’s Get the Word Out About Aphasia

In response to the flood of calls, texts, postings and emails we have received from people in the aphasia community in the US and around the world, the National Aphasia Association would like to offer information about this condition to the general public in an effort to correct an error of omission in ABC’s coverage of Congresswoman Gabrielle Giffords’ recovery.

First, we would like to express our heartfelt congratulations to Gabby for her recovery so far and offer her, Mark Kelly and their family any ongoing support they might need as they face the challenge of aphasia.

While ABC did an accurate and comprehensive job of explaining aphasia, the program inexplicably never mentioned Gabby’s condition by name. It is aphasia – the inability to read, write, speak or communicate after a stroke or other sudden traumatic brain injury, such as the one Gabby tragically experienced. Continue reading the full article…

Using the Internet Safely, part 1

Internet safety = Cyber safety

1. Many people use the Internet in everyday life.

  • Family and friends keep in touch using the Internet.
  • We use computers and the Internet to learn new information.
  • We also use computers for personal business like shopping or banking.
  • E-mail and digital social networking is a way for people to stay connected with family, friends, and the world around them. Continue reading the full article…

On Gabby Giffords: ABC News Fails to Find the Words…

While last night’s ABC News telecast with Diane Sawyer about Gabby Gifford’s struggles and her promising progress was nothing short of miraculous, ABC News did a disservice to the almost two million Americans who suffer from aphasia, the communication disorder brought on by traumatic brain injury or stroke, from which Giffords suffers. Not once was the word aphasia mentioned. For many of those struggling daily with this language deficit, aphasia may be only one of their many health issues, but it’s a vital one. For many of us who work daily with people who have aphasia, we too struggle to “get the word out” about the meaning of aphasia. Continue reading the full article…

The Treasure Hunt

Entering the Society for Neuroscience video contest was a wonderful opportunity to provide information about aphasia, particularly for children. The video tells the personal story of people with aphasia and their families, and the poem allows the power of words to bring the whole story together. It is called ‘The Treasure Hunt’ because we wanted to help people understand how something so precious could be lost and what it might be like to try and find it again.

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Your Brain At Its Best

Following is a handout with tips that I use with people with aphasia to make speaking, reading, and writing as easy as possible. Continue reading the full article…

Help us design the iPhone app…

A few weeks ago we released our first iPhone app: Pronunciation Tutor /W/. While this app targets English as a Second Language speakers (i.e. non-native speakers of English), it has several features that may be of interest to the aphasia community.

Pronunciation Tutor /W/ is a tool that non-native speakers of English can use to practice production of the sound W (as in win, where). This sound is a problem for many non-native speakers of English because it does not exist in many languages. In speech production by non-native speakers it typically gets replaced by sound V.

Listening Practice Screenshot

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Aphasia Software Finder

These are exciting and frustrating times for those concerned with the treatment of aphasia. Exciting because an ever growing body of research and experience shows us that treatment can make a difference. Frustrating because most healthcare systems are suffering financial pressures that mean very few people with aphasia are likely to be allocated enough resources so that they can benefit from these advances – especially as there is increasing evidence that amount and intensity of treatment can be crucial.

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Jill Bolte Taylor’s Stroke of Insight

From TED: Jill Bolte Taylor got a research opportunity few brain scientists would wish for: She had a massive stroke, and watched as her brain functions — motion, speech, self-awareness — shut down one by one. An astonishing story.

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Meet Len Upin And His Wonderful Artwork…

Stroke and Beyond

“I thought my job, as an art high school teacher, was an ideal profession. Plus my 3 kids and my wife were a healthy, creative, handsome group. It was a perfect picture. Yet, my stroke and aphasia, my decision to select an early retirement and the loss of our oldest son was too much to bear — all within a 10-month period.”

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