April, 2011

Diane Ackerman’s One Hundred Names for Love

Some of you may have heard of Diane Ackerman‘s book “One Hundred Names for Love: A Stroke, a Marriage, and the Language of Healing”. Below we are sharing an audio interview (and the corresponding transcript) with Diane that has been originally conducted on The Leonard Lopate Show and published on WNYC website.

Transcript

Diane Ackerman and her husband Paul West, both writers, had built their relationship and 40 year marriage on the intricacy of word play. But, when at 74 Paul suffered a stroke that rendered him largely unable to communicate it was not only his joy of communication that was devastated, but also the foundations of their marriage.

One Hundred Names for Love, Ms. Ackerman’s new memoir published by Norton, chronicles the couple’s struggle to rehabilitate Paul and rebuild their relationship. And, I am very pleased that it brings Diane Ackerman back to our show today. It’s always a pleasure to see you.

Continue reading the full article

Do Do Do

Lori Ramos Cavallo, founder of Care Partners Resource, was the caregiver for 8 years to her mother who survived a massive stroke in 2001. Lupe was left with expressive aphasia and said do.do.do thinking she was saying words. Lori wrote this poem as a tribute to her mother’s ability to overcome this challenge with dignity and grace. Continue reading the full article

An Interview with Elizabeth McIntyre

Elizabeth McIntyre

On a couple of occasions we’ve featured Aphasia the Movie and Carl McIntyre on the Aphasia Corner Blog. Recently, we had an opportunity to interview Elizabeth McIntyre, Carl McIntyre’s wife. Dr. Barbara Bennett Shadden – a speech and language pathologist and a long-time caregiver to her husband who has aphasia – helped us conduct the interview with Elizabeth.

Part of the extraordinary power of the movie Aphasia is the way the audience is allowed to experience the world – and aphasia – through your husband’s eyes and ears and mind. It is so difficult for those not touched by aphasia to understand how the inability to communicate affects every aspect of life, including one’s sense of self or identity. The movie truly lets us inside Carl’s world.

But what about you…your world…your sense of identity? We catch glimpses of your reality throughout the movie, but it is Carl’s story. Perhaps you would be willing to share a bit of your experiences in answering the following questions: Continue reading the full article

David Dow’s Story

I had a massive stroke when I was ten years old. I was living in Ohio and came to Las Vegas with my family. The trip was supposed to be 3 days, but I got home nearly 3 months later. This is my story of how I overcame many challenges over the last fifteen years so I could live a “normal” life again.

Before my stroke I was active, outgoing, and had lots of friends. I loved school and was in the gifted program. Continue reading the full article